December 2, 2016 Conference


IRIS Registry: History, Current Benefits and Future Direction

Dr. William Rich III (Presenter)
Speaker Session Topic
In 1985 the American Academy of Ophthalmology was one of three specialty societies who developed evidence-based guidelines, also known as the AAO Preferred Practice Patterns. Within ten years it was obvious if we wanted to demonstrate the impact of these guideline on patients outcomes it had to be measured. In 1997 the AAO launched NEON, the National Eye Outcomes Network, the second specialty surgical outcome registry. Unfortunately participation in NEON required practices to laboriously record data on paper that was submitted to the AAO for analysis. It completely disrupted the workflow of both private practices and academic medical centers. Shockingly, no one wanted the data. NEON folded two years later. Jump forward to 2012. With societal demands on the profession to demonstrate quality and outcomes, the expanded use of electronic health records and the emerging technology to extract data from EHRs, the AAO developed a plan to launch a new registry, IRIS, Intelligent Research in Sight. It was launched in April of 2014 with the goal of serving the needs of 2,200 ophthalmologists and includes eight million patients by 2017. Today IRIS has over 14,000 participating members with over thirty million patients and 100 million visits. It is the world’s largest clinical registry. In summary, IRIS is currently improving the quality of ophthalmologists while meeting Federal regulatory demands to avoid penalties and achieve bonuses. It is the major vehicle to inform public policy, evaluate trends in care, measure the prevalence of eye disease and will shortly be a major source of ophthalmic peer reviewed literature and research.